Good News, Bad News

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So last Friday I spent the entire day having a CT Scan, a PET Scan, and preliminary preparation for radiation. That meant multiple trips through giant donuts. The gurney is automatic and rolls you in and out like some sort of science fiction launch tube.

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After all the Scans I saw the Doc on Monday for a the run down, it goes like this… The cancer in the Lymph nodes and bones seems to be stalled to recessing, however the cancer in the lungs and liver has shown a slow growth of 1-4mm depending in the area. The lung spots are very small and not a major concern, but the liver is another story, bigger spots are raising concern although my liver function still shows normal. The plan is to switch up the Chemo and Amino Acid therapy to target the growth areas, this starts Monday, the neuropathy should desist, but will more than likely be replaced by hair loss and fatigue. My heart rate may go up, but I’m not too concerned since I live normally at the lower end of the spectrum (90/60). I don’t have to have my little chemo buddy for 48 hours after anymore so I’m pretty happy about that, and the fact that the Doc is willing to change direction for a better result makes me feel much more comfortable.

Radiation to shrink the Esophageal Tumor starts in 14 days, it will run everyday for two weeks. The hope is that the tumor will shrink enough to be able to pull the stent and allow me to eat normally…oh how I wish this will work. I miss Steak and Fried Chicken.

Since having the Stent put in I’ve been able eat a wider variety of stuff than I thought, Thai Noodles, Popeye’s Butterfly shrimp, Cheerio’s with fruit… it’s been great. I’m OK as long as I cut everything into a 2cm cube or smaller and drink something after every couple of bites. Getting the bowels back online after months of only ensure has been a little rough but seems to be evening out. The difficult part is that I have to lounge or sleep at a 30 degree angle or better, however to get a belch out (which is needed often) I have to sit up to hunched forward. So lately I’m either Cleopatra or the Thinker.

cleopatra                 thinker

Increased Calories translate to greater strength and stability, I’m looking to knock malnutrition off my list of ailments… the irony never ends, here I’ve been surrounded by and preparing food but can’t eat it. It’s a movie I swear, a little dark, but a movie for sure. The bottom line is I’m feeling stronger and better everyday I eat, my goal is to keep pushing myself toward a better quality of life. I cherish the time I get to spend with family and friends, as should we all. Many of you may not realize that you are also on the clock, it may not be as clear-cut and trackable as mine, but you don’t know when you will “cease to be” any more than I do, so please for the love of sacred life follow your passions, don’t leave things undone, travel, learn, love… fill yourself up with the interests and drives you’ve pushed down or ignored for far too long!

 

6 thoughts on “Good News, Bad News

  1. It is a bit ironic that I am thanking you for motivating us to do more with our lives as you are the one that is living day to day with this horrible disease chasing you down. But I do thank you for reminding us to get off our butts and do what we dream of. I do wish that we could all do more for you… You are motivating me more in my commitment to the American Cancer Society Relay For Life as a volunteer and raising funds to continue the fight against Cancer… Bless you Trent.

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  2. I just started following your journey and I really appreciate that you maintain your sense of humor. My long, strange trip will never compare to yours, but I can appreciate the sleeping propped up and no appetite and I am not suffering through radiation or chemo. I have medication-induced anorexia, but am still heavy enough that I look like a normal (or overweight) person on the outside. I know my disease and co-morbid conditions have shortened my life and I have yet to come to terms with it and have nowhere near as much grace as you have shown.

    Thank you for sharing this with us.

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  3. Thank you for continuing to be you 🙂
    I’m glad you are doing what you love and are able to start nibbling morsels. Thank you for reminding us to live life to the fullest and thank you for sharing your story.

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  4. Dearest Cleopatra,
    Just as Dr Norman Cousins found humor to nourish his body and soul during his bout with the big C, I’m glad that you, too, are using humor.
    Your insights sprinkled with humor and optimism make for an easy read of a difficult topic.
    I hope. Like Cousins, you enjoy some belly laughs from your kind of comedy. Then, like Cousins perhaps you’ll be looking back on this successful journey someday…while helping to direct the movie.
    Stay strong. Thanks for sharing.

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